What We Do

Our Focus

Advocating for the rights and needs of medically fragile children.

Education

Teaching others about the challenges medically fragile children and their families face. 

Health

Medically fragile children are at risk for death or institutionalization when changes are made to healthcare.

Community

Community support is very important to our advocacy efforts. We need our community to help us educate and advocate for medically fragile children


Advocates for Medically Fragile Kids NC

Using our voice to advocate for children and families:
  • Formation of CAP-C advisory committee and CAP-C policy revisions
  • Appointed to NC DHHS Medical Care Advisory Committee (MCAC) by Secretary Cohen
  • Chair of Olmstead Plans Children and Families Committee
  • Co-Chair of Beneficiary Engagement Subcommittee
  • Member of NC Health Working Group
  • Member of Children’s Advocacy Network
  • Mentor to NC Child’s Parent Advisory Council
  • Member of NC MomsRising Steering Committee
  • Support for families during COVID19 and Hurricane Harvey

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